Hey I’m Carden. I was diagnosed with FSH Muscular Dystrophy when I was 9. High school was when walking became difficult and I started wearing ankle braces in college. Post college, I transitioned to a scooter part time then a wheelchair full time in 2017. Though my physical body is constantly declining, my strength is breaking down barrieres for people with disabilities at work, in the city, and in local Atlanta organizations.

The FSHD Society is important to me because they are a central hub that provides services and resources to improve my life and drive efforts towards finding a cure. I also am the youngest Board member and have served for 4 years.

The money I'm raising by participating in this Walk & Roll is supporting programs and funding research that will directly impact patients (me) and their families living with FSH Muscular Dystrophy (FSHD). Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals. It affects everyone differently, but over 70 percent of patients experience debilitating pain and fatigue. There is no effective treatment or cure—but there is hope. I'm committed to making sure that no one faces this disease alone. Please visit the FSHD Society website (fshdsociety.org) to learn more about FSHD, ways to get involved, and everything that is happening! Thank you for your support!