FSHD affects nearly 1 million men, women and children worldwide, leaving them with the inability to walk, raise their arms, or simply smile. The FSHD Society is the largest network of patients, families, clinicians, researchers and friends - all advocating for FSHD. 

YOU are the driving force that enables the FSHD Society to support & empower families and to fund groundbreaking research to find treatments and a cure!

Your support of the FSHD Society will be put to work right away, to push forward the most promising research, help empower patients and families to live stronger, healthier lives, and press the government and major institutions to give FSH muscular dystrophy (FSHD) the funding and attention it deserves. Your support ensures that no patient need ever face this disease alone, and pushes us towards our goal of delivering treatments to our families by the year 2025!