The money we're raising by participating in this Walk & Roll is supporting programs and funding research that will directly impact patients and their families living with FSH Muscular Dystrophy (FSHD). Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals, or 870,000 people worldwide. Around 20 percent will need a wheelchair by age 50. Over 70 percent experience debilitating pain and fatigue. There is no effective treatment or cure, but there is hope. Thank you for your support! 

Details for Participants:

When: Saturday, September 17, 2022 at 10:00am

Where: Genesee Valley Park

1000 E. River Rd, Rochester, NY 14623

We will start at the Roundhouse Pavilion off Moore Road.