2022 St. Louis Walk & Roll to Cure FSHD

2022 St. Louis Walk & Roll to Cure FSHD supporting FSHD Society
FSHD Society

About 2022 St. Louis Walk & Roll to Cure FSHD

The 2022 St. Louis Walk & Roll to Cure FSHD


Hawk Ridge Park
8392 Orf Road, Lake Saint Louis, MO 63367

Check-in opens at 9:00am  |  Walk Starts at 10:00am

The St. Louis Chapter of the FSHD Society will be participating in the International Walk & Roll to Cure FSHD - the only event focused solely on funding progress for FSH Muscular Dystrophy.

Every step matters. That is why we must continue to look to the future. 

Register for free to walk or roll today, as a team or individual walker. Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media and via email, and invite others to join you in getting us closer to a cure!

We are working together to make a difference for those living with FSH Muscular Dystrophy!

Extra fun the day of the Walk & Roll:

Rob's Portraits For every $50 dollars or greater donated, you will be entered into a raffle to win an 8 x 10 custom watercolor painting by artist, Rob Zilch. The drawing will take place at the end of the walk.  (You do not have to be present to win). www.robsportraits.com

Dr. Jane Bufe, Occupational Therapist and founder of Your Supportive Place will be present at the Walk & Roll to answer any questions participants have regarding the benefits of occupational therapy services. www.yoursupportiveplace.com


Starts at:  September 17, 2022 9:00 AM
Ends at:  September 17, 2022 12:00 PM


Hawk Ridge Park
8392 Orf Rd
Lake Saint Louis,MO 63367 USA


Marsha Sverdrup

Why Participate?

FSHD affects nearly 1 million men, women and children worldwide, leaving them with the inability to walk, raise their arms, or simply smile. The FSHD Society is the largest network of patients, families, clinicians, researchers and friends - all advocating for FSHD. YOU are the driving force that enables the FSHD Society to support & empower families and to fund groundbreaking research to find treatments and a cure!

How Your Support Makes a Difference

Your support of the FSHD Society will be put to work right away, to push forward the most promising research, help empower patients and families to live stronger, healthier lives, and press the government and major institutions to give FSH muscular dystrophy (FSHD) the funding and attention it deserves. Your support ensures that no patient need ever face this disease alone, and pushes us towards our goal of delivering treatments to our families by the year 2025!

Thank You to our Generous Sponsors!