2022 New England Walk & Roll to Cure FSHD supporting FSHD Society
Kelly Owens
To support my family who struggle with MD
Kelly Owens
To support my family who struggle with MD
The money I'm raising by participating in this Walk & Roll is supporting programs and funding research that will directly impact patients and their families living with FSH Muscular Dystrophy (FSHD). Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals. It affects everyone differently, but over 70 percent of patients experience debilitating pain and fatigue. There is no effective treatment or cure—but there is hope. I'm committed to making sure that no one faces this disease alone. Please visit the FSHD Society website (fshdsociety.org) to learn more about FSHD, ways to get involved, and everything that is happening! Thank you for your support!