Register today to walk & roll virtually as a team or individual. Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media and via email, and invite others to join you in getting us closer to a cure!
Then come celebrate all your hard work on Saturday, October 1st with a Rooftop party in Boston!
We are excited to announce that we will be auctioning off some exciting items on event day, including:
Hunter Henry autographed football
Rory McIlroy autographed pin flag
Two pairs of Optum Field Lounge Patriots tickets
...and more! BIDDING IS NOW OPEN! Click HERE to view items & bid early!
We are working together to make a difference for those living with FSH Muscular Dystrophy!
Date
Starts at: October 1, 2022 10:00 AM
Ends at: October 1, 2022 1:00 PM
Location
Optum Roofdeck
1325 Boylston Street
Boston,MA 02215 USA
Contact
Lexi Pappas
alexipappas19@gmail.com
Why Participate?
FSHD affects nearly 1 million men, women and children worldwide, leaving them with the inability to walk, raise their arms, or simply smile. The FSHD Society is the largest network of patients, families, clinicians, researchers and friends - all advocating for FSHD. YOU are the driving force that enables the FSHD Society to support & empower families and to fund groundbreaking research to find treatments and a cure!
New England Walk and Roll 2021
How Your Support Makes a Difference
Lexi Pappas speaking in 2021
Your support of the FSHD Society will be put to work right away, to push forward the most promising research, help empower patients and families to live stronger, healthier lives, and press the government and major institutions to give FSH muscular dystrophy (FSHD) the funding and attention it deserves. Your support ensures that no patient need ever face this disease alone, and pushes us towards our goal of delivering treatments to our families by the year 2025!