2022 Southwest Florida Walk & Roll to Cure FSHD supporting FSHD Society
FSHD Society

About 2022 Southwest Florida Walk & Roll to Cure FSHD

2022 Southwest Florida Walk & Roll to Cure FSHD

After an empowering and impactful campaign last year, the SWFL Chapter of the FSHD Society is once again participating in the Walk & Roll to Cure FSHD - the only national event focused solely on funding progress for FSH Muscular Dystrophy.

FSHD is a degenerative muscle disease that causes progressive weakening of skeletal muscles. Little by little, it steals away patients’ strength and their ability to complete even the most basic tasks - like holding your child, brushing your hair, doing the laundry, and standing independently.

Though there is no cure, there is HOPE. Over 20 pharmaceutical companies are actively researching a cure, with clinical trials underway and on the horizon. You can be part of the movement to find a cure! Your contribution or attendance on September 10th gives hope to the nearly one million patients worldwide.

Register to "walk or roll" today, as a team or individual walker. Invite your family, friends, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media and via email, or invite others to join you in getting us closer to a cure!

Together, we will find a treatment for FSHD. Find out more information about the Walk & Roll and see photos from last year's hugely successful campaign here.


Date

Starts at:  September 11, 2022 8:00 AM
Ends at:  September 11, 2022 10:00 AM

Location

Baker Park
50 Riverside Circle
Naples,FL 34102 USA

Contact

Heloise Hoffmann
SWFloridaChapter@fshdsociety.org

Why Participate?

FSHD affects nearly 1 million men, women and children worldwide, leaving them with the inability to walk, raise their arms, or simply smile. The FSHD Society is the largest network of patients, families, clinicians, researchers and friends - all advocating for FSHD. YOU are the driving force that enables the FSHD Society to support & empower families and to fund groundbreaking research to find treatments and a cure!

How Your Support Makes a Difference

Your support of the FSHD Society will be put to work right away, to push forward the most promising research, help empower patients and families to live stronger, healthier lives, and press the government and major institutions to give FSH muscular dystrophy (FSHD) the funding and attention it deserves. Your support ensures that no patient need ever face this disease alone, and pushes us towards our goal of delivering treatments to our families by the year 2025!

Thank You to our Generous Sponsors!